families


red threadann-hood-bio 

    http://www.exhalezine.com/magazine/?page_id=521

In 2002, the renowned author Ann Hood lost her five year old daughter Grace to a rapid, freak, strep infection.  A novel, The Knitting Circle (2004) and a memoir, Comfort: A Journey Through Grief ( 2008) stand as testaments to that loss, and are gifts to everyone who has or will suffer in kind.

 CG: Some people who have lost a child have found books helpful and cathartic. But to a great extent, words failed you immediately after Grace’s loss. Why do you think some people are helped by reading/writing of others experiences, and others not?

 AH: As a professional writer, writing was impossible because I could only view it with a writer’s eye. I think journaling or writing your own loss story can help healing if you are not constantly editing, reviewing and dissecting like a writer would. 


CG: What, if anything, has changed for you since publishing the Knitting Circle, then Comfort – finally addressing in words what was unspeakable.  Have you had a great response from those in similar situations? 

I’ve received literally thousands of emails expressing the very thing I hoped the books would accomplish:  validating the feelings of grief. You are not crazy. You are not alone. You are heartbroken.

 CG: You open the book with the comments you are forced to endure: people telling you what to do, how to respond to your tragedy.  But some bereaved parents judge those who kept their distance after hearing of a still birth. Others prefer to be left alone, like a wounded animal, fearing the force of their rage will make them incapable of monitoring a response. If there was one thing you could tell the world to do for a person who has lost a child, what is it, if anything? 

Don’t presume to know what we are feeling. When someone says ‘I can imagine how you feel,’ — it’s almost insulting, though not intended as such.  It is true that losing a child is one’s worst fear. And it is unimaginable. Better to listen to how we feel than to tell us how we must feel, or how you would feel.

 CG:  You’ve written of the intense joy you experience while holding your new adopted Chinese daughter, Annabelle, while concurrently, and equally intensely, still feeling the anguish of losing Grace.   

 AH: Every day I am struck by feelings of joy beside my grief. Even in small things: laughing with a friend, the satisfaction of completing a project, a beautiful day. Yet all of it is juxtaposed against losing Grace, against her absence. C.S. Lewis wrote about the death of his wife: her absence is like the sky. It covers everything. 

  Ann Hood’s new novel, The Red Thread, will be published by W.W. Norton in May.

http://www.annhood.us/

 From Comfort:

 ”I have been there. I am the one woman standing in the street on a Thanksgiving afternoon, screaming and pulling out my hair. That is my mother coming out the door, yelling my name. That is me, running from her, running down the beautiful street where houses wear plaques announcing how old and important they are. That is me making that sound which is both inhuman and guttural and the most human sound a persona can make: the sound of grief … That is me running, zigzagging, trying to escape what is inescapable: Grace is dead.”

 

Copyright 2008, Ann Hood, Comfort, A Journey Through Grief.

Should IVF Coverage Be Mandatory?

           A couple of Decembers ago, I got an email from Resolve, the national infertility organization — a plea for end-of-year, tax-deductable donations. “Imagine a world where fertility treatment didn’t exist …”  began the missive.

            It had been years since I looked to Resolve for aid in my finally defunct effort to have a family. The organization claims to serve a dual purpose: to prove information and support to those pursuing children, and reconciliation to those who wind up without. But the overwhelming number of communications and services, and the only lobbying activities – urging Congress to pass laws to make insurance coverage for fertility treatment mandatory — were geared towards the baby quest.

              So I deleted their emails after a quick skim. But having planted the idea of a world where fertility treatments didn’t exist, I couldn’t resist an honest answer: “I honestly wish they didn’t!” 

           This spurred an instant response, offering a plea for my “healing” – as if only a wrong-thinking person could even question the fertility system.   

            I hit the reply key, and then typed in: “The fertility industry makes those of us for whom the system didn’t work even more of an anomaly than we already are.”

            Within minutes, a Resolve staffer called. She stressed that Resolve was there to listen to people like me. 

            “Good. All I’m saying is — if infertility is defined as an illness, then that makes those of us without children sick and abnormal, right? I can’t reconcile to my situation if society can’t reconcile itself to me. Plus – I have a real illness – having infertility over the age of 35 isn’t an illness, it’s biology.”

            The staffer was dumbfounded.

            I continued, “I’ve worked hard for the little financial security I have, so I’m really cheap and risk-averse. I knew most IVF’s in my age group failed. If it were a stock, I wouldn’t have bought it. But because it was someone else’s financial risk – I gave it a shot. But I’d never have gambled on it with my own money. I’d never have got sucked into the emotional maelstrom. And if no fertility treatments existed at all, I’d have much more easily accepted my childless state. And so would the rest of the world.”

            A lengthy conversation ensued. I insisted on a precise definition of infertility. At 28 it’s an illness that should be cured when possible, and paid for by medical insurance. At 48, IVF is an artificial prolonging of the motherhood timeline. Was it fair to make other policyholders in the insurance risk pool subsidize that? The Resolve staffer was shocked.

            But this year, the once-taboo arguments I raised are coming out in the open.

            In July, Salon’s Broadsheet column backed the Family Building Act of 2009, which calls for insurance companies to provide IVF coverage. Fifteen states currently require it, and Resolve would like to make it a national mandate.

            The financial logic behind insurer-provided IVF is that those who can’t afford the more expensive and precise IVF procedure use the cheaper fertility drug clomid, which may cause the release of too many eggs, resulting dangerous multiple births that tax the health care system more in the long run.

            Of infertility, Broadsheet columnist Lynn Harris declared, “It appears that we can no longer afford to treat its treatment as a luxury.”  

            Some commenters disagreed, with the predictable advice: You can always adopt. Which prompted corrective replies from other readers who pointed out that adoption is often more expensive and risky than IVF.

Other responder’s put the argument in the context of the larger health care crisis:  “When society can afford insurance coverage to provide life-saving treatments for all the children already here who need them, then we can spend more money creating new children.”

http://www.salon.com/mwt/broadsheet/2009/06/24/ivf_coverage/

  

Consider Yourself Warned

          In Britain, authorities recommend giving a fertility test at 30, seeing it as an awareness tool. Fertility counseling should go hand in hand with other kinds of sex ed.

http://www.guardian.co.uk/lifeandstyle/2009/aug/09/fertility-mot-children-nhs

             A former chairman of the British Fertility Society said it was crucial to tackle a “widespread misapprehension” about the success rate of fertility treatments. The chances dip sharply with age: from 31% for women aged under 35, to below 5% among women over 41.

 Mommy Oldest

            This summer, the death of a Spanish woman who gave birth at 66, leaving a toddler orphaned (she was unmarried) spawned heated debate on the blogs over whether or not there should be a ceiling-age for fertility treatments.

            In Newsweek, African American writer Raina Kelly spoke out: “Sometimes for the sake of the children-to-be, we may have to put away our longings and grieve for the children we might have had rather than go to the ends of the earth to get them. We have to think about the children, not just the having them.”

http://www.newsweek.com/id/208022

Some feminist voices argue that the reproduction playing field should be leveled – that if men can become parents at sixty, then so should women. Personally, I wonder if this is something to envy – but I’d hate to see reproduction outlawed for one sex and not the other. 

The Motherlode on Stillbirth

In her New York Times Motherlode column, Lisa Belkin asked readers how to respond to a family who’s experienced stillbirth. Again, sparks fly in the comments section, with one commentator saying that words like “tragedy” should be reserved for mass events, like the Holocaust or Hurricane Katrina.

http://parenting.blogs.nytimes.com/2009/08/13/when-a-full-term-pregnancy-ends-tragically/

Which button do I push for a dead baby?

            Stillbirth is more common that Down’s Syndrome, SIDS and HIV – one in every 160 pregnancies. Few expectant parents are aware of this, and so come to it completely unprepared — in an increasingly impersonal medical environment with no protocol for addressing it.

            NPR’s Tell Me More recently ran a segment featuring two parents of stillbirths who are trying to do something about that.

http://www.npr.org/templates/player/mediaPlayer.html?action=1&t=1&islist=false&id=111063912&m=111063895

Guest Sherokee Isle, who suffered a stillbirth in 1981, is trying to make sure hospitals have on hand a copy of her book, Empty Arms: Coping After Miscarriage, Stillbirth and Infant Death.

            She and fellow guest Alan Goldenbach, who recently wrote of his wife’s stillbirth in The Washington Post  (http://www.washingtonpost.com/wp-dyn/content/article/2009/07/06/AR2009070602918.html) point out that parents-to-be aren’t told that when movement slows down near due date, it’s a danger sign. They are lobbying for more research to find out why stillbirths occur.

In June of 2008, then-Sen. Barack Obama introduced the Preventing Stillbirth and SUID Act of 2008, but it was unable to gain much traction. (”SUID” stands for “sudden unexpected infant death.”) Sen. Frank R. Lautenberg (D-N.J.) continues the effort, “We need to know more about stillbirths to help increase awareness and prevention,” Lautenberg said. “We are crafting legislation to improve data collection so we can better understand what’s causing stillbirths and help parents looking for answers.”

 

                                                           

silentsororitycoverdiaz

 

 

 

 

 

 

 

 

 

 

 

For the world to listen. The tide is finally turning against the unfettered fertility quest, with the sad public examples of Octo-Mom, and Jon and Kate’s marital nosedive. Finally, last month, in British Cosmo, Cameron Diaz said it: Maybe there’s just too much emphasis on having babies. Maybe if women weren’t under such constant pressure to reproduce — “shunned” was the word she used for the childless — it wouldn’t feel so terrible when it doesn’t happen.

In the British press the single, childless-for-now star has drawn more raves than rants:

The U.K.  Telegraph calls Cameron Diaz  ”the height of responsible citizenship” – for remaining childless. Hear hear!

http://www.telegraph.co.uk/news/newstopics/celebritynews/5524706/Cameron-Diaz-does-the-decent-thing.html

In this month’s Exhale, I praise the forthright star and give a rave review to Pamela Jeanne Tsigdinos’s new book, Silent Sorority: 

Summer Reading Roundup

 Some Fresh Food for Thought, plus some Old Chestnuts to bite into – try not to break any teeth!  

             In books, as well as in blogs, I often find our friends across the pond speak more realistically about fertility issues than we Americans, with our unfettered optimism. (Babies for everyone! IVF at 90!)

 Beyond Childlessness, Rachel Black, Louise Scull, Rodale Press, 2005

            I have read several books on unintended childlessness, none offered the depth of comfort and shared experience as this one. The authors are two women — one single, one married to a man who forbid a family without making his preferences clear before marriage — who sought out and interviewed other women in their situation, and let them tell their stories themselves.

            This book is head and shoulders above any other “fix the problem” or memoir anthologies on childlessness, because it ventures where others dare not go. Well-meaning books like the husband and wife-authored Sweet Grapes sugarcoat some of the ugly truths. 

 
            Other books on childlessness say “it’s no use going over whose fault it is.” Actually, there’s a lot of good in that. One of the authors, Rachel Black, has worked out with her husband that when she/they are faced with the ubiquitous and painful question, “Do you have children/why not?” She says “My husband didn’t want them.” Childless women are demonized and ostracized, and assumed to be selfish. It was his decision, let him take the responsibility socially. She also made him get a vasectomy, so he wouldn’t reproduce with someone else, should their marriage fall apart under this incredible strain, and move on to a younger woman.
                 This book also exposes what an arduous and punishing route adoption can be – especially in Britain. Adoptive parents must be rich, young and healthy — a hundred times more qualified than a natural parent. One interviewee commented on the British government’s stress on keeping adoptive children in touch with their biological families. “If they’re that keen to keep in touch, why are they not looking after the child themselves? This constant having to keep in touch, we couldn’t actually break free and be our own family, and have a proper, intimate family life, there were always going to be people looking over your shoulder, who you’re answerable to.” 

Silent No More            

If you haven’t ordered Exhaler Pamela Jeanne’s Tsigdinos’s Silent Sorority yet, here’s a teaser: 

“You should never, never ask a woman when/if she’s going to have kids. If she’s already been trying for a while, it will feel like a knife to the heart. It forces her to either tell you more than she wanted to or to lie. Because if she had wanted to talk about having kids in the first place, she would have.”

 “Telling a woman who has lost a baby that ‘it wasn’t meant to be’ is not compassionate. It’s merely a way of easing your own discomfort by dismissing ours. Minimizing our pain, be it offering ‘solutions’ or explanations only serves to make yourself feel better while inflicting further hurt on us … It’s hard to contemplate the randomness of the cruel universe, where bad things happen to good people, and it may make it easier for them to sleep if they can convince themselves that there is a reason for it, and we must’ve deserved it. Telling us you know what we’re going through because it took you X months to get pregnant minimizes our feelings. You had a happy ending. We may not.”

 “I’ve been stripped down and made new on this journey. I’ve become utterly vulnerable, and forced to see the world differently.  I’ll never have the kind of optimism that some people have that anything is possible, that it will all work out in the end.”

 “I have had to take responsibility for my life in a deeper way than I ever had before. And because we live in a society where so few seem to take true responsibility for themselves and for those around them, it is very lonely. We don’t live in a world that really embraces soul-searching, and so much of this journey has been about soul-searching for me. I think a lot of the bad and unsolicited advice and glib responses to infertility (like “just adopt” or “it wasn’t meant to be”) are because people are so uncomfortable with pain and the possibility of pain with no resolution. We can’t take away the pain. All we can do is transform the response to it.”

 Adapted from Silent Sorority: A (Barren) Woman Gets Busy, Angry, Lost, and Found, Copyright 2009, Pamela Mahoney Tsigdinos.  www.silentsorority.com.

Pamela Jeanne’s memoir is the first honest empty-handed one-person take since:

Why Don’t You Have Kids? Living a Full Life Without Parenthood,

By Lesley Lafayette

This book, published in 1994, is a bit dated — not in the essential common sense and truth of its pronouncements, but in that the boldness of the author’s opinions. They would be entirely unacceptable in today’s family-at-all-costs universe.

            I found it extremely reflective of my own experience, though it won’t be to everyone’s:

“Looking back, I can see now that my desperate desire to have a baby came not from some internal biological drive, nor was it the result of thoughtful introspection and practical planning. It was my response to a hysterical society, a culture that stripped me of my intrinsic worth and told me point-blank that to fail to reproduce was to fail.”

“…there was no opposing view, no voice of reason, no organization or group to provide a dialogue.”

            On giving up the baby quest: “I stopped beating myself up. You’ve heard the old joke about hitting yourself on the head with a hammer because it feels so good when you stop? It does.”

            Writes the author, “I know what it is to obsessively grieve and despair because I did not fit in to what society deemed as the norm, what my peers and the media and even my government saw as acceptable and ‘fulfilled.’ I know what it feels like to be alone, to be different, to be isolated, to be ignored.”

            She begs the mass media to: “Have some characters who don’t even want kids and enjoy a happy life nevertheless. Have someone opt for an abortion occasionally rather than turn wistful and blushing about her pregnancy as if she drank a cup of Instant Mommy, as if all the problems of the world will be solved when she has her baby.

            “The fact that more than a million abortions are performed each year in this country is a testament that not every pregnancy is a wanted one. Writers should be free to portray real life and not the sugar and spice that conservative advertisers force upon them … tell the truth.”

            She describes taking part in a T.V. talk show on women and childbearing where she was the only dissenting voice in a panel of “talking uteruses” – including a woman who, with grown children in their 30s, had an egg-donor baby at 52.

            “Each and every one of them … had one goal and one goal only in her life: to produce an infant as quickly as possible, spending whatever money she had and all of the time it might take – even going into debt and emotional quicksand if necessary.”

            Lafayette’s opinions would be unacceptable in today’s media environment. The trajectory of the book leads towards a directive to embrace a “Child Free” identity – to form groups and make friendships with others similarly situated. It’s a great idea, but my concern is that this further segregates the Child Free/Childless from mainstream society, when what is needed is mutual respect, interaction and consideration. 

            The Child Free Network she began but seems to have distanced herself from has a spotty web site that seems to have drifted from the author’s original worthy aims, degenerating into snarky commentary about “breeders.” There are articles complaining about other people’s “noisy, stinky” kids.  This is certainly disappointing. Still, the original book is an honest, interesting read to balance today’s fertility-centric media message.

 

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rivaprisAward-winning, Best-selling Rhode Island Authors to Speak at Ocean State Writers Conference

            View a slide show of the event (which like the entire conference, was a smashing success) here: tp://picasaweb.google.com/Peter.Leviten/URIWriterSConferenceWritingAboutTheFamily#

  All Providence-native Priscilla Warner ever wanted was a mother “in a black sheath dress and a single strand of pearls, who could discuss the Vietnam War intelligently at cocktail parties.”

            What she got was “A whacked-out artist in army fatigues, blouses made of flour sacks, and black patent leather earth shoes.” 

            New York Times best-selling author Priscilla Warner (my sister-in-law) will be speaking about the challenges of writing about her mother (my mother-in-law), the renowned Providence artist, 80-year old Riva Leviten at the Ocean State Writing Conference to be held at the University of Rhode Island Thursday June 18 through Saturday June 20. An excerpt from her upcoming memoir ran recently in More magazine. http://www.more.com/4298/2742-a-portrait-of-the-artist/2.

            Warner will be speaking on a panel I’m moderating titled Writing and the Family, at 10:30 a.m., Saturday, June 20. She is the co-author of the New York Times best-seller, The Faith Club, in which she grappled with writing about her father’s often confusing attitude towards his family’s religion. A religious Jew, he first sent her to Providence Hebrew Day School, then, abruptly, the Quaker Lincoln School, where she was made to sing Christian hymns.

            Now out in paperback, The Faith Club garnered Warner and her co-authors a spot on The Today Show, write ups in USA Today and a world publicity tour. www.thefaithclub.com.  

  

padmavenkatraman

              Warner will be joined in talking about the challenges of writing about, while  continuing to honor, our families by North Kingstown resident Padma Venkatraman,  author of Climbing the Stairs. The much-acclaimed novel is based on her parents’ experience in World War II era colonial India, and was named winner of the 2009 Julia Ward Howe Boston Authors Club award. The literary society is the oldest author’s club in the nation. 

              Says Venkatraman, “Most other novels about Indian Hindus tend to confuse the issue by describing customs and ignoring the spiritual truths that the religion is actually about.”   

           A research scientist with the Oceanography Center at URI, Venkatraman first considered writing the story as a memoir. “I felt that fiction would liberate my story to highlight its three most important threads – Hindu spirituality and philosophy, the debate between nonviolence and violence which took place in my family, and providing the colonial perspective on World War II. I felt that a memoir would tie me down -  as a scientist, I have a nonfiction reporting voice  I wanted to break away from, cleanly and completely.”

             Says Venkatraman, “The novel’s central question is of violence versus nonviolence. I want people who read it to see its relevance in America today, rather than merely reading the story as historical fiction set in India.”
              

         PEN-award winning writer and Providence-native Patrick Tracey, author of Stalking Irish Madness: Searching for the Roots of My Family’s Schizophrenia, agonized over writing the story of his two sisters who “dropped down the elevator shaft” of schizophrenia in early adult hood.  He feared exposing their personal struggles, but was compelled on a quest to find a cause for the illness that plagued his family for generations. He ultimately found it in Ireland’s history of oppression and starvation at the hands of the British. 

            The haunting yet uplifting memoir was chosen – among thousands – as one of the Best Books of 2008 by Slate magazine, and was recognized by the National Alliance on Mental Illness as the book most helpful to families dealing with mental illness. Tracey’s memoir received national publicity, including write-ups in USA Today and a lengthy NPR interview, which can be found at www.stalkingirishmadness.com.

(p.s. Tracey moved the audience to tears and sold out his supply of books.)

 

           These are just a few of the writers who will be featured at the Ocean State Writers Conference.  Many of the events are free to the public, for a full schedule and registration information see: http://www.uri.edu/summerwriting/

In this month’s issue of Exhale, Mr. Tracey talked to me about the difficulty of dating women rapidly running out of eggs while banking a faulty gene pool:

exhale-484x546When we think of “Irish Madness,” it’s usually a happy phenomenon — the wild celebrations of St. Patrick’s Day.  A new book tells a darker story.

Irish Catholics have long been known for taking pride in their large broods. But fear of passing on genetically inherited schizophrenia stopped this author from carrying on that tradition.  

   “I very much wanted to have lots of children,” says Patrick Tracey, author of Stalking Irish Madness, Searching for the Roots of my Family’s Schizophrenia.   ”But fear of passing on my family’s disease made it impossible.”

 

When we think of “Irish Madness,” it’s usually a happy phenomenon — the wild celebrations of St. Patrick’s Day.  A new book tells a darker story.

Irish Catholics have long been known for taking pride in their large broods. But fear of passing on genetically inherited schizophrenia stopped this author from carrying on that tradition.   

  “I very much wanted to have lots of children,” says Patrick Tracey, author of Stalking Irish Madness, Searching for the Roots of my Family’s Schizophrenia.   “But fear of passing on my family’s disease made it impossible.”

His haunting memoir, published by Bantam last August, was named one of Slate magazine’s Best Books of 2008, awarded the 2009 KEN book award by the National Alliance on Mental Illness, and most recently, recognized with a prestigious PEN award.

After an idyllic childhood as the youngest of five siblings, the first of Tracey’s two sisters succumbed to rapid-onset schizophrenia when he was just eighteen. “One after the other. I realized that like my mother, I could be a carrier. Or worse, might go schizophrenic myself.”

Schizophrenia generally manifests by 30, and when Tracey cleared that bar, he began to think earnestly about marriage, and worry “fervently” about paternity. 

“Marriage would’ve suited me fine,” says Tracey, still single at 50. “But every woman I met was frantically running out of eggs, and couldn’t seem to understand that parenthood was off the table for me.”

He tried to tell them he was not Daddy material, given his questionable gene bank. His progressively heavy drinking was another obstacle.

“I was hit hard by my family’s collapse,” he says.

Before he graduated college, his mother died suddenly of a brain aneurysm, he thinks, spurred by “grief and loss” soon after her youngest daughter was diagnosed with the hereditary illness.  Having grown up with a mother and brother in the insane asylum, she’d known she was at risk to pass on the disease, but was persuaded otherwise by well-meaning doctors.

Says Tracey, “I felt there was not much point to life if something like schizophrenia–or a similar life-shattering tragedy–could just come along and take someone out.”

He became a serial monogamist, “An outgrowth of my commitment-phobia, itself an outgrowth of my fear of passing on this severe hereditary mental illness. I tried to disguise myself as a noble alcoholic savage.  Truly I was all over the place.” 

 It wasn’t until he hit bottom, alone, that he straightened out. Traveling to Ireland, he found the roots of schizophrenia in maternal malnutrition due to famine. While doing his research, he lived on a campsite where he observed families at close hand, with a raging storm of feelings.

A Fascination with Families

 “I am endlessly fascinated by families,” Tracey admits. “The way they interact, their dynamics, what makes them tick, why some find a measure of happiness where others do not, how some play a bad hand well and others with the best cards toss them away. My family was torn asunder, schizophrenia cast a shadow over us all, the sane obsessed that we might be carriers.”

Why didn’t he just find a nice girl and adopt?   “The ugly truth is that I was not fit to parent. Drinking was a form of self-laceration — survivor’s guilt, a way of going crazy myself every night — a mixed-up man’s way of crying.”   

Though eight years have passed since his last drink, at this stage of his life he’d rather help his ill sisters and his nephew – the sole offspring among his four siblings — than start his own family.
        But he feels he’s paid a big price for his choice. “I could’ve been a good father and family man if I hadn’t got lost in despair.  I’ve had some great relationships, and vent my paternal spleen through my nephew.  The care of him fell to me from the late 1980s through the 1990s, but I never dared spread my own seed.”

When he’s around a particularly well-adjusted family, he can’t help but feel like an outsider:  “Families gather with other families, and in Ireland they were out in force.”

A Special Role

He felt less the odd man out when he saw himself reflected in the community. Every other village, he found, has a Bachelor Walk or some bachelor legend. “Ireland has a rich tradition of bachelorhood,” he discovered.

Only the oldest sons were financially eligible for marriage, and they had to wait until they inherited the tiny potato patch. The younger brothers were either sent to the seminary, abroad or became bachelors.

Men’s Biological Clocks                   

            Ironically, Tracey learned, this primogeniture of oldest sons – who only inherited the family property at 50, when their own fathers died – is one of the major contributing factors to schizophrenia itself. Recent studies have linked the schizophrenia gene to a mutation in elderly sperm, detailed in the memoir. www.stalkingirishmadness.com.

 

babyfestNadya Suleman has had extensive plastic surgery to resemble another famous mother, Angelina Jolie. While her octuplets have turned into a national freak show and blog snark-fest, it’s not hard for me to follow her logic.

In the third issue of Exhale I discuss “Octomom” as a natural product of a deregulated fertility industry,  and highlight a memoir by another mother whose judgement was questioned. 

 

Creation Fixation

             Today, you have to explain your decision not to utilize the new technology if you have even the vaguest desire to have children.  Why suffer the stigma of being different in an increasingly conformist society, where being married and childless is seen as more odd than being a never-married parent, a single mother of many?

            From a front-row seat, I saw how the sexual revolution impacted my parents’ generation, who came of age and married in the fifties. It hit like a hurricane, breaking apart marriages, spawning a generation of latchkey kids, sending women to conciousness-raising groups and out into the work-force. In the same way that the pill ushered in both the sexual revolution of the sixties and the feminist resurgence of the seventies, the fertility frenzy has impacted society of the nineties and aughts; the outside of the envelope is being pushed further and further out. The business world, education system, dating conventions and even family pecking order rely heavily on the idea that the fertility industry is a safety net.  When I started a new job at 35, I was warned, off the record, not to get pregnant the first year, then brightly advised: “That’s what we have our fertility benefit for.”

But it doesn’t work for everyone; it didn’t for me. In my recent interview on Belief.net, sparked by my last month’s Exhale column, I wonder if the answer isn’t advising young women to freeze their eggs, but rather, retuning society to make it easier economically for young women to start their families at more appropriate ages: http://blog.beliefnet.com/beyondblue/2009/01/christina-gombar-an-interview.html.

The Right to Reproduce?

            Nadya’s case raises the very uncomfortable issue of whether or not having as many children as she wants, by whatever means, is as much a feminist issue as abortion rights.   In the Guardian, Jennifer Block wonders if it’s not time to “take a close, hard look at our healthcare priorities. While we have the technology and expertise to keep a 1.5-pound premie (Suleman’s tiniest) alive outside the womb, standard American maternity care is resulting in poorer and poorer outcomes for the vast majority of mothers and babies.”

http://www.guardian.co.uk/commentisfree/cifamerica/2009/feb/10/nadya-suleman-octuplets-ethics

Birthing versus Parenting

            “Any fool can have a child.” Our new president’s words, not mine – said on the campaign trail, speaking to an African American audience. Properly raising children, President Obama says, is another issue entirely.  Perhaps for their own safety, it’s a blessing that Nadya Suleman’s children will be living in a fish bowl.

In a blog post titled, “They Shoot Horses, Don’t They?” author Karen de Balbian Verster discusses her dilemma after witnessing the abuse of one of her daughter’s playmates. She also sites an alcoholic woman who boasted of abusing her dog, but succeeded in adopting a Chinese infant.    

            De Balbian Verster asks: “I wonder why we as a society allow people who are unfit parents to become parents in the first place? It’s a slippery slope, I know, but shouldn’t there be some conditions in place before one has a child? Things like another parent, mental health, financial stability? It seems like too little, too late to worry about these things after the child has been starved in the basement, burned by cigarettes, or sexually abused. But since we can’t seem to ban assault rifles, I’m afraid licensing parents must remain a futuristic concept.

http://mysite.verizon.net/kdebv/2008.12.01_arch.html

 

An “Unfit Mother” Reflects

             Polio survivor Anne Finger was told she was unfit to give birth: it was dangerous, she was disabled, she was unmarried. Her 1990 book, Past Due, a Story of Disability, Pregnancy and Birth tells what happened when she defied standard advice.

        After suffering polio as a toddler, Finger grew up subject to one butchering operation after another in the vain attempt to bring life back to her atrophied leg muscles. Because of her horrendous experiences with the medical establishment, when she decided to become a mother, she eschewed traditional medicine and chose midwifery, despite the fact that she was an atypical, and potentially high risk obstretric patient.  The midwife miscalculated, the labor went on too long, and her son wound up inhaling his own fecal matter. Death, or a life sentence of severe disability was predicted by the angry medical establishment that she finally reverted to.

            Despite her son’s full recovery, Finger’s trauma – first under the knife of post-polio childhood surgeries, then a well-meaning midwife unequal to the task of her  complicated delivery, and finally, the shaming of the medical establishment – scarred he.: Her thoughts, during those terrible days when her son struggled for life:  “I do know that if he dies, I will think that technology is the monstrous, inhuman, a mad scientist’s creation; and if he lives, I will think it a miracle.”

          One could as easily apply these words to the current fertility industry frenzy: “I have the places where I draw my lines about what I would and would not do; and other people … people I respect, have different lives. But I’m aware too of how social pressure can work to keep people in line: how when a technology is available it becomes harder and harder not to utilize it. If you’re over 35 and pregnant, you have to explain your decision not to have amnio, justify yourself.”

                             

Overfertility in the Age of The Feminine Mystique

        Richard Yate’s dark 1960 novel, Revolutionary Road, is now a gripping movie starring Kate Winslet. While the narrative is one of over-fertility rather than infertility, the story throws into dramatic relief how fragile and tenuousness is this largely taken-for-granted business of birth, for the child, for the mother. How destructive, yet somehow inescapable, the issue of maternal identity – for better or in this case, for worse.

Blogs and Bits

 http://www.moretolife.co.uk

       This British site for involuntarily childless includes U.S. news, coping strategies, and personal stories. A good resource for those who wind up without.

               

 

 

 

 

 

 

  

 
 

 

 

 

easter-island Easter-Island

I’ve joined Exhale  — a literary magazine for intelligent readers who have either lost a baby, or can’t figure out how to make one in the first place. I’ll be examining books, blogs, mass media and other art forms’ creation fixation.  In my first column, I wonder why the story is always Baby and Happily Ever after, when 44% of women don’t even have children. I feature the work of multidisciplinary artist Tiffany Lee Brown, whose Easter Island Project explores how a culture’s ancestor worship nearly brought creation on that island to a grinding halt.

 The myths: 

  • People can go from desperately wanting a child, to “choosing” to be child-free.
  • Anyone Can Adopt.
  • Women wind up childless because they put off marriage to establish careers;
  • Or were looking for Mr. Right instead of Mr. Good Enough.
  • Anyone who wants a baby can get one, because this is America, where there is a solution to every problem.
  • Pets, gardening, or spending time with other people’s children fills in for not having biological children of our own.
  • People without children aren’t real adults, and don’t know what real love is.
  • Infertility is a women’s issue.

 

Missing in these pervasive, reductive myths, mainly produced by prescriptive how-to books, are the infinite number of individual stories describing the long, complicated, and sometimes unspeakable circumstances that may have led up to someone’s childless status. There’s no category in the current zeitgeist for ‘When all systems fail.’ 

 Here’s a real story:

My friend Elsa’s older fiance had two children from a previous marriage, vetoed more. She agonized and underwent lengthy soul-searching before deciding to go ahead with the marriage, determining to embrace a child free life.  She was relentlessly badgered by everyone from neighbors to co-workers to family members to change her husband’s mind, force a baby on him if necessary. A cousin who’d tricked an older husband into a child advised the same strategy. In Elsa’s case, it would have been quite a challenge, as her husband had a vasectomy.  

Elsa and I lived in the child-centered, Westchester suburbs, outside New York City. I, too, was involuntarily childless, for entirely different reasons, but I can attest the day-to-day experience was scalding.  My friend was pitied, her husband demonized, Daily, she heard:

“You’re selfish”

“You don’t know what real love is.”

“Your husband will leave you.”

He did leave, because with so few counterparts in her workplace and community, her sense of being cheated of her rightful destiny shook the foundations of her sanity and corroded her marriage beyond repair.  

A good marriage wasn’t enough to counterbalance either her private loss or her public alienation. So much for the Child Free Myth.

 The Invisible Woman

             I come to this issue as a childless-not-by-choice woman in the midst of the biggest baby boom since the end of World War II, when newscasters tout their children on air and every actress seems to be having twins at 47.

           But 44% of women in their childbearing years don’t have children, and some never will.  While the world is rightly concerned with family issues, the constant focus on motherhood can make it easy for a childless woman to feel that she’s less than a woman, that in failing to reproduce, she’s failed at life.

Simone de Beauvoir famously said, “You can’t have the book and the baby.” History proved her wrong. But these days, those of us who wound up without a baby find that we can’t get a book either – to read or to publish.

In making initial inquiries for this column, I found very few books reflecting my situation, and talked to more than one aspiring author who found the door to publication shut smartly in her face if her story fell outside of the proscribed norms of Motherhood Achieved, or Happily Child Free.  Uber-feminist Seal press has dozens of titles on motherhood, but not a single on the lives of women without children.

Laments my eighty-something, involuntarily childless friend Bea, “Even in the Bible, all these women who can’t have babies eventually get them!”

             At City College’s Harlem campus, my professors helped me understand why African American writer Ralph Ellison wrote a book called Invisible Man. As well as being excluded by segregation, African Americans saw no reflection of themselves in literature, government, commerce, art or advertising.

            These days, it’s the same for those without children.  When I was growing up in the 70s, there was this progressive idea floating around that a woman could live a rich, rewarding life full of close, fulfilling bonds, even if she didn’t marry and have children. In Mary and Rhoda, I saw an alternative future self on the T.V. screen.  Such depictions are nearly extinct now, as the publishing industry churns out book after book with a variation on the theme, I Overcame Fertility and You Can, Too!

 The Bubble of Silence

            In my own online search for kinship, I’ve come across dozens, if not hundreds of blogs whose purpose is to aid and abet the great fertility quest. Like a tenacious shopper at a discount warehouse, I foraged long and hard, and was finally rewarded with a shining jewel, multidisciplinary artist Tiffany Lee Brown’s blog Nymphe: Living Childless and Childfree, at http://magdalen.blogs.com/nymphe/www.Nymphe.com. Linked there was a piece published in the Oregonian Humanities Magazine, “Breaking the Bubble of Silence,”  detailing how merely relaying to fellow artist friends the subject matter of her most recent performance piece — on the grief of being childless – stopped the conversation cold.

 “If I’d announced that I was having a baby, the others would have heaped congratulations on me. If I’d brought out a photo of my lovely stepdaughter and told them of her soccer exploits, they would have chuckled and asked questions. Even if I’d softly admitted that I’d been having a hard time since my aunt passed away, they’d have offered condolences or a hug.

But childlessness is a pain experienced in silence. There is no place in civilized conversation for such discussion. No one really knows what to say, and there are no social rituals with which to mourn miscarriages or unsuccessful fertility treatments.  

The grief of childlessness visits us for many reasons. Some are infertile. Others don’t have a partner and don’t want to be single parents. The deep need to procreate hits us with a staggering intensity, as primal and undeniable as the need for food, water, and sex. The enormous role of children and family in our cultural, community, religious, and political environments reminds us constantly of what we’ve lost–what we’ve never had in the first place. Many of us feel ashamed to discuss childlessness in public for fear of undercutting the joy of parents and families. And when we do bring it up, we often hear clueless, insensitive, and sometimes cruel responses. So, most of the time, we keep the discussion safely shut away.

          Her year-old blog offers a round-up of mini-book reviews  and links thoughtful pieces in the alternative press, like a recent Mother Jones piece on the preponderance of new “fertility movies” like Baby Mama and, And Then She Found Me, asking “where are the women without bassinets?”  

            The Portland-area artist has been deeply engaged in exploring the issue of infertility and childlessness in her art – music, visual, performance and writing.

 Her art goes beyond the issue of personal grief to explore socio-political concerns and the family-centric society.  

            When her own infertility situation hit, it brought into question her entire lifestyle, and all the choices she had made. Her work is engaged on a global level, examining the very concept of Creating.

            “What makes us create?” she asks. “There is this tremendous excitement in our culture about creating – whether it’s babies, buildings, or bombs.”

            Currently, her Easter-Island project, touring and interactive on her art site, explores this issue: http://www.magdalen.com. It also gives visitors a chance to participate and offer their own tribute to their own infertility situation.  

            Lee Brown has been fascinated the South Pacific island since the age of six. “In a way, I see it as a micro-cosm of a world, tied deeply into the whole concept of creating, fertility and childlessness.  Once well-populated, the island was filled with fertile, abundant tribes, who fought each other.” Easter Island is known for its huge monolith face-sculptures, ancestral totems worshipped by islanders. The tribes were thought to have moved the figures around the island, in the process cutting down the trees, destroyed the ecosystem, and deprived themselves of the means to go out on the sea and fish. Thus, Easter Island, once a baby-happy place, became greatly depopulated and barren. 

            “It’s the idea of making babies, and making art, and the ancestral chain. People have babies as a way of connecting to their ancestors, by continuing the line,” she says.

            “Giving birth is a way of connecting with their grandmothers, an unofficial spiritual ancestor worship we all practice,” she says. “Yet, this practice helped wipe out much of the wildlife and population of Easter Island.”

            Says Lee Brown, “Our society is messed up when we’re viewed and defined by roles we’re supposed to occupy, as Mom and non-Mom. The system that tells women motherhood is going to be endless bliss, and that finds so women distressed at their real, challenging and less than blissful experience is the same one that tells non-Mom’s that they’re lacking for not being mothers. There’s the ancient regime telling us we have to be mothers – and the new one where it’s constantly in our daily lives, and a media pitting working Moms against stay at homes and Moms marginalizing and devaluing non-Moms. The divisiveness of pitting child-free or childless against Mommies keeps us from understanding each other.”

While Brown characterizes herself as feminist, she sees the issue as “Totally crossing gender boundaries. Men, women, transgendered and other-gendered people — all of us experience the pain of childlessness, whether by choice or circumstances, and prejudice as a result,

Infertility Is a Men’s Issue

  “I very much wanted to have lots of children,” says Patrick Tracey, author of Stalking Irish Madness, Searching for the Roots of my Family’s Schizophrenia – named one of Slate magazine’s Best Books of 2008. After an idyllic childhood as the youngest of five siblings, the first of two sisters succumbed to rapid-onset schizophrenia when he was eighteen. “One after the other. I realized that like my mother, I could be a carrier. Or worse, might go schizophrenic myself.”

Schizophrenia generally manifests by 30, and when Tracey cleared that bar, he began to think earnestly about marriage, and worry “fervently” about paternity. 

“Marriage would’ve suited me fine,” says Tracey, still single at 50. “But every woman I met was frantically running out of eggs.”

He tried to tell them he was not Daddy material, given his questionable gene bank and progressively heavy drinking.

“I was hit hard by my family’s collapse.” Before he graduated college, his mother died suddenly of a brain aneurysm, he thinks, spurred by “grief and loss”  soon after her youngest daughter was diagnosed with the hereditary illness.

“I felt there was not much point to life if something like schizophrenia–or a similar life-shattering tragedy–could just come along and take someone out.”

He became a serial monogamist, “An outgrowth of my commitment-phobia, itself an outgrowth of my fear of passing on this severe hereditary mental illness. I tried to disguise myself as a noble alcoholic savage.  Truly I was all over the place.” 

 It wasn’t until he hit bottom, alone, that he straightened out. Traveling to Ireland, he found the roots of schizophrenia in maternal malnutrition due to famine. While doing his research, he lived on a campsite where he observed families at close hand, with a raging storm of feelings.

“I am endlessly fascinated by families,” Tracey admits. “The way they interact, their dynamics, what makes them tick, why some find a measure of happiness where others do not, how some play a bad hand well and others with the best cards toss them away. My family was torn asunder, schizophrenia cast a shadow over us all, the sane obsessed that we might be carriers.”

Why didn’t he just find a nice girl and adopt?   “The ugly truth is that I was not fit to parent. Drinking was a form of self-laceration — survivor’s guilt, a way of going crazy myself every night — a mixed-up man’s way of crying.”  

Though eight years have passed since his last drink, at this stage of his life he’d rather help his ill sisters and his nephew – the sole offspring among his four siblings — than start his own family.
        But he feels he’s paid a big price for his choice. “I could’ve been a good father and family man if I hadn’t got lost in despair.  I’ve had some great relationships, and vent my paternal spleen through my nephew.  The care of him fell to me from the late 1980s through the 1990s, but I never dared spread my own seed.”

When he’s around a particularly well-adjusted family, he can’t help but feel like an outsider:  “Families gather with other families, and in Ireland they were out in force.”

But he felt less the odd man out when he saw himself reflected in the community. Every other village, he found, has a Bachelor Walk or some bachelor legend. “Ireland has a rich tradition of bachelorhood,” he discovered. Only the oldest sons were financially eligible for marriage, and they had to wait until they inherited the tiny potato patch. The younger brothers were either sent to the seminary, abroad or became bachelors.

Men’s Biological Clocks                    

            Ironically, Tracey learned, this primogeniture of oldest sons – who only inherited the family property at 50, when their own fathers died – is one of the major contributing factors to schizophrenia itself. Recent studies have linked the schizophrenia gene to a mutation in elderly sperm, detailed in the memoir. www.stalkingirishmadness.com.

 Further reading: An intelligent discussion of fertility blogs appears at:

http://www.thenewatlantis.com/publications/blogging-infertility

A blog exclusively devoted to those who are childless at the will of their spouses: www.childlessbymarriage.com

 Upcoming: author interviews with acclaimed writers. Ann Hood, author of the novel The Knitting Circle, and memoir Comfort, both of which deal with child loss, and Elizabeth McCracken, whose recent memoir An Exact Replica of a Figment of My Imagination tells the story of her son’s stillbirth.  Visit www.ElizabethMcCracken.com to read an excerpt in Oprah magazine.

 

 

Elaine and Austine Tracey in the 1960s

Stalking Irish Madness has been named one of the Best Books of 2008 by Slate magazine: http://www.slate.com/id/2206635/pagenum/all/

Years ago when we lived in New York city, my husband and I spent four or five hours every Sunday night delivering sandwiches to homeless men. The vast majority were Viet Nam War vets, out of work and homes because mentally ill. Most were clean, quiet, polite, grateful. A few – like the 6’3” drag queen up in Times Square – were angry, swinging at the air, arguing with unseen enemies.

Schizophrenia,” we said to each other in whispers, gingerly extending a brown bag pre-packed with chicken salad sandwich, yogurt and an apple, which the drag queen snatched before stalking off in high heels, muttering.

Recently we travelled up to Brookline Mass, where our friend Pat Tracey gave a reading to promote his book, Stalking Irish Madness: Searching for the Roots of my Family’s Schizophrenia. All four of his sisters — including the two affected by with the mental illness, were there.

I was struck by how normal they seemed. When one has a chronic condition, whether physical, mental, or a combination of both, it’s easy to fall into black and white thinking – the “normals” and the afflicted.

Eighty percent of chronic illnesses are invisible, and you’d be hard put to sort out at first glance which two of the four Tracey sisters were afflicted. Michelle, who has bi-polar schizo-affective disorder,  is as effusive and articulate as her twin Seanna, who is “normal.” Austine, once catatonic, merely appeared shy and sweet. There were no verbal histrionics, no talking to invisible people, no bursts of anger.

Said Pat, “Maybe the worst thing about this illness, worse than the altered reality and the hearing of voices itself, is the stigma attached.” The “crazy” label that compounds the isolation, and against which the ill often respond with frustration and anger.

I live with a completely different illness, but I had the same response when it first invaded my life. The reaction from bosses, some of my family and friends, if not my husband, was not compassion, but anger: Stop this nonsense right now! The worst probably came from myself — anger that I was ill, that my life had changed so drastically, that people distanced themselves from and condemned me for having a physical condition I hadn’t asked for, and had as yet no control over.

Of schizophrenics, Pat said, “Maybe these people are on a different wave length. Maybe instead of being thought crazy, they ought to be honored. A millennium ago, they were thought to be seers, shamans. Now they’re picking through garbage cans. Prisons are full of schizophrenics.”

Pat reports that, in addition to famine leading to gestational malnutrition — the roots of his own family’s illness date back to the Great Irish Famine — war is a big trigger for schizophrenia.

One in a hundred people have the disease – that’s five million Americans. Yet there’s so much shame around it. Why? Rather than accept chronic illness as a fact of life, there is always that push for a miracle cure. A well-meaning woman in the audience was eager to inform Pat — who did extensive scientific research for his book — that a certain component of vitamin B would cure his sistsers’ ills. They’ve been affected over 30 years, and subject to every possible medical treatment. Their conditions have been stabilized, not cured. The fact is, the vitamin therapy works for about one percent of people who hear voices.
“I think the best cure for schizophrenia is understanding from the family, and love.”

I’d also like to add – adequate financial resources for good health care. Austine and Michelle are both fortunate enough to benefit from residency in good state-funded group homes, not far from where their “well” siblings, Elaine, Seanna and Patrick live in the Boston area. They were clean and well-kept.

For 30 years, the eldest Elaine, who never had children of her own, but who Pat describes as “the matriarch” has been the primary caretaker of the afflicted sisters.  Without such understanding, I shudder to think where Michelle and Austine might have wound up. The Traceys expemplify the kind of family values I can get behind.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I’d also like to add – adequate financial resources for good health care. Austine and Michelle are both fortunate enough to benefit from residency in good state-funded group homes, not far from where their siblings, Elaine, Seanna and Patrick live in the Boston area. They were clean and well-kept.

For 30 years, the eldest Elaine, who never had children of her own, but who Pat describes as “the matriarch,” has been the primary caretaker of the afflicted sisters.  Without such understanding, I shudder to think where Michelle and Austine might have wound up. The Traceys expemplify the kind of family values I can get behind.